Wednesday, March 28, 2012

Adventures of an almost spica cast

So Elijah had his surgery a little over 3 weeks ago and as you can see he has been casted from the top of his thigh to his toes with a bar that connects to both legs.  Well, things got pretty interesting before we even left the hospital.  We waited all day for the special wheelchair to be delivered to the hospital so we could take Elijah home.  It turns out there was a miscommunication somewhere and the wheelchair was actually deliver to our house instead of the hospital.  Thank God my mother in law was there when it arrived.  So we decided to go home without it and just carry Elijah to and from the car and house.  They sent us home with a special spica cast car seat so Elijah would fit in the car.  Oh my gosh this seat is huge!  The seat doesn't have raised sides on it or arm rests so Elijah could fit into it (his legs are in a wide spread position).  We had to push the passenger front seat all the way forward because Elijah's legs stick straight out.  Luckily the seat is very padded and looks very comfortable for him.  The hard part is actually getting him in the car or through doors without smashing his toes.  We have to angle him sideways.
    We had to get a little creative with keeping him entertained because for the first 2 weeks he did not move around very much.  We got him some new movies, a baby gym to place him under, and some new toys to hang from it.  After 2 weeks of resting and constant repositioning he was able to move around much more and sit up, even roll to where he wanted to go.  We started taking him outside for a change of scenery.  We take him on walks and swing on the porch swing.  He really enjoys it.  We found that it is much easier taking him around in the wagon rather then the wheelchair.  Since we weren't here for the delivery we pretty much had to figure out how to use it on our own.  It wasn't very kid-friendly.  There wasn't any kind of guard on the wheels that would keep Elijah from sticking his hand through them.  He actually got his elbow stuck in the wheel and it scraped it up pretty good. 
     So eating, sleeping, and bathing are all a little bit different right now.  He can't fit in his highchair right now so we have started pureeing his meals again for now.  It is easier for him and keeps his casts pretty clean.  (he is a very messy eater)  At first we had Elijah's mattress on the floor next to our bed and he would sleep there.  We would change his positioning every 4 hours.  After he started to be able to move around more I would wake up and find him stunk in between the mattress and the wall and buried on pillows so we had to move him to our bed to be safe for now.  Of course we have to sponge bathe him.  He doesn't mind so much.  He gets just as excited as if it were a regular bath!  He loves the water! 
     We decided to let him go back to school this week.  I really struggled with deciding whether or not to take him with such big casts.  I now realize it was the best decision.  After 3 weeks of being stuck at home Elijah was so happy to go back to school and see his friends again!  And it is so nice for me to be out of the house again too.  We did have to get creative with figuring out pants that would work with his casts.  I didn't want to send him to school without pants.  So I took some gym shorts and ripped out the seam in between the legs and put snaps there so we could get them on.  We haven't run into any rain yet but they said if it does rain we can put his legs in a trash bag and tie it at the waist.
      Anyways, so far so good.  I guess the only part that was really hard for us was not being able to explain to Elijah that this is only temporary and that his legs won't be this way for ever.  Over all he has been very accepting.  He has his cranky moments but this really shows how brave he is.  We are so proud of Elijah!

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